Privacy & Personal Safety
1. Who We Are (Data Controller)
PAD Trials, an initiative of the Global PAD Association, acts as the data controller for personal information collected through this platform.
Contact:
📧 Info@PADhelp.org
2. Our Role
PAD Trials is a patient navigation and research connection platform.
We help individuals:
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explore clinical trials and research opportunities
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understand their options
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connect with care teams when requested
We do not provide medical advice or replace your healthcare provider.
3. What Information We Collect
We collect only information you voluntarily provide, including:
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name and contact details
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general health information relevant to PAD
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location (for trial matching)
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trial interests and preferences
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communication preferences
We follow data minimization principles — collecting only what is necessary.
4. Lawful Basis For Processing (GDPR/ UK GDPR)
We process personal data based on:
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Consent — when you submit information, join the registry, or request support
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Legitimate interests — to operate, improve, and deliver our services
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Health-related purposes — where applicable for research navigation and support
You may withdraw consent at any time.
5. How We Use Your Information
We use your data to:
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match you with relevant trials or research opportunities
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help you understand eligibility and next steps
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support communication with trial teams
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assist with coordination (if requested)
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provide ongoing patient support
6. Identifiable vs. De-Identified Data
Identifiable Data
Includes:
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name
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contact details
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personal health information
👉 This is only shared:
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with your explicit consent
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for a specific purpose (e.g., connecting you to a trial)
De-Identified (Anonymized) Data
We may use, analyze, and share de-identified or aggregated data.
This data:
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does not identify you
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cannot reasonably be re-identified
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may be combined with other data
👉 We may share or license this data with:
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research institutions
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healthcare organizations
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industry partners
This supports improvements in:
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clinical trial access
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patient engagement
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research design
7. Care Coordination & Navigation
If you request assistance, we may:
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connect you to clinical trial teams
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coordinate appointments or evaluations
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support logistics such as transportation
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provide guidance before and after participation
👉 Your information is only shared:
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with your explicit consent
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and only what is necessary
You remain in control at all times.
8. Data & Security
Identifiable Data Includes:
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name
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contact details
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personal health information
👉 This is only shared:
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with your explicit consent
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for a specific purpose (e.g., connecting you to a trial)
9. International Data Transfers
Your information may be processed in the United States or other countries.
When transferring data internationally, we apply appropriate safeguards, including:
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contractual protections
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secure data handling practices
10. Data Retention
We retain personal data only as long as necessary to:
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support your engagement
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meet legal obligations
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generate de-identified research insights
You may request deletion at any time.
11. Your Rights (Global Data Rights)
Depending on your location, you may have the right to:
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access your data
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correct inaccurate information
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request deletion (“right to be forgotten”)
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restrict or object to processing
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request data portability
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withdraw consent
To exercise these rights:
📧 Info@PADhelp.org
12. Complaints
If you are located in:
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UK: Information Commissioner’s Office (ICO)
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EU: Your local Data Protection Authority
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Canada: Office of the Privacy Commissioner
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Australia: Office of the Australian Information Commissioner
You may file a complaint if you believe your data is not handled properly. But you can always ask for your information to be deleted via info@PADhelp.org
13. Children's Privacy
PAD Trials is not intended for individuals under 18.
We do not knowingly collect data from minors.
14. Updates To This Policy
We may update this policy periodically.
Changes will be posted with an updated effective date.
15. Contact
📧 Info@PADhelp.org
Global PAD Association / PAD Trials